Deakin University
1 in 4 Poll Plain Language Statement

Information for people with a disability and their proxies

Please read this document before you begin the poll. You may also like to print a copy for reference later and discuss it with a friend or relative.

About the 1 in 4 Poll

People with a disability, over the age of 18 years, are invited to complete the current poll online at www.1in4pollaustralia.com or to contact the researchers for a hardcopy. Alternatively, you may have received this information because a family member, or person you support, was invited to participate in the 1 in 4 Poll and require your assistance.

The 1 in 4 poll is a series of polls on topics chosen by Australians with disabilities. We believe that people with disabilities have the right to have their voice heard by governments, service providers and the community in general. For instance, the topic of the first poll was social inclusion and asked questions about wellbeing and the experiences of social inclusion. Future topics will ask for your thoughts and experiences on a range of social issues. You can subscribe to email alerts of future polls at the website www.1in4pollaustralia.com. This way we can let you know when the next topic is ready. Your contact details will not be linked to any surveys you complete.

Participation is voluntary. Whether you choose to complete the survey or not, will in no way impact on your relationship with Deakin University or with Scope (Vic) Ltd, staff or carers. If you decide to take part and then change your mind while doing the survey, you can stop at any time and this will not affect your relationship with the researchers or their organisations.

By completing a survey, you consent to your responses being used in our research. Each survey will take between 20 and 30 minutes to complete. You may like to ask someone to help you complete the survey – someone you are happy to share your answers with.

There are two versions of the survey, including an Easy English version, which uses pictures to help you to understand the questions.

The survey begins by asking you questions such as where you live, your age and about your disability or disabilities. We then ask questions relevant to the topic and may ask you to allocate a score. There are a few questions at the end of the survey where you can provide more detail if you wish.

Current poll

The current poll focuses on negative attitudes towards disability. By attitudes we mean the views, behaviours and beliefs of others about disability or people with disabilities. This is a topic that was requested by people in the first 1 in 4 poll. This survey seeks to find out how much society has changed and what attitudes people hold about disability now.

The survey asks you to answer some sensitive questions. These include asking about negative attitudes such as insulting language or bullying, as well as personal information about you.

If you are asking someone to assist you to fill in the survey, you should think about whether you would want them to know your answers. Choose someone you trust and feel comfortable with.

Your privacy

The survey is anonymous. Your personal information cannot be identified and nobody will know you have taken part in the survey unless you tell them.

The information you provide will only be used for the purposes of this project. Survey information will be stored on a computer file at Deakin University. No personal identifiable information will be kept on the database. If you complete a paper copy of the survey, your survey responses will be entered into a computer file and the paper copy kept in a lockable filing cabinet.

For people who ask to be on the mailing list to receive future surveys, details will be stored separately to survey responses. Contact details will be maintained securely at Deakin University. What you say in your survey cannot be linked to your name on the mailing list.

Only the research team on the 1 in 4 poll will have access to the survey and mailing list. The data will be stored for five years at Deakin University before being destroyed.

If you join the mailing list but then decide you do not want to receive any future polls, simply enter your details on the “withdraw from mailing list” on the website. If you withdraw from the mailing list and then change your mind, you can still take part in later surveys.

Risks

It is possible that answering the survey may make you feel frustrated and angry at the difficulties you may experience in life. If answering the questions causes you distress, please do not continue with the survey. You may wish to contact your doctor for a referral to a counsellor.

Benefits

Research shows that many people with a disability do not have the same opportunities as other people in the community. We will use survey information to let the government, the community and other researchers know about issues for people with a disability. We will do this through reports and publications, conference presentations, and the media. The information we collect will be used to influence policy making by government.

The results

Results of each poll will be available to all participants. You may contact one of the researchers to ask for a copy of results to be posted or emailed to you (contact: 03 944 6705 or email 1in4poll@deakin.edu.au).

No individual will be identified in the presentation of results.

Research contacts

The 1 in 4 poll is a joint project of Deakin University and Scope (Vic) Ltd. It is funded by the Australian Research Council and Scope (Vic) Ltd.

If you would like further information about the project or have any problems with the survey, including feeling distressed or upset, you can contact the researchers. Their contact details are:

Professor Joe Graffam
Deakin University
Geelong Waurn Ponds Campus
Email: joseph.graffam@deakin.edu.au
Phone: 03 5227 3113

Dr Erin Wilson
Deakin University
Burwood Campus
Email: erin.wilson@deakin.edu.au
Phone: 03 92446158

Complaints contacts

If you have any complaints about anything to do with the project, the way it is being conducted or any questions about your rights as a research participant, you can contact:

The Manager
Office of Research Integrity
Deakin University
221 Burwood Highway
Burwood VIC, 3125
Phone: 03 92517129
Email: research-ethics@deakin.edu.au

Please quote project number 2010-200.

Or

Megan Thompson
Secretary
Scope Human Research Ethics Committee
Scope (Vic) Ltd
830 Whitehorse Road
Box Hill VIC, 3128
Phone: 03 9843 2026
Email: mthompson@scopevic.org.au

This project has been approved by the Research Ethics Committees at both Deakin University and Scope (Vic) Ltd. The project will be carried out according to the National Statement on Ethical Conduct in Human Research (2007) produced by the National Health and Medical Research Council of Australia.

The project will be carried out according to the National Statement on Ethical Conduct in Human Research (2007) which is produced by the National Health and Medical Research Council of Australia.

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